tag:blogger.com,1999:blog-36215135510936755812024-02-06T21:34:52.056-08:00DOC's "Kiss It" Cancer ClubDOC (Dave) Callahan was diagnosed with Stage IIIb Multiple Myeloma in September, 2010. I have created this blog to update family, friends, and other multiple myeloma patients on Dave's condition, share information, and provide support for one another as we start this tough journey of "healing". Much Love: JeanaJeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.comBlogger64125tag:blogger.com,1999:blog-3621513551093675581.post-2071759342021483192017-10-22T12:45:00.001-07:002017-10-22T12:45:35.438-07:00Kissing This Blog Goodbye- May 5, 2017Family and friends, ending this blog is another goodbye for me.<br />
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It is just another reminder that Dave is no longer here. Having the blog meant we were still fighting. <br />
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That he was still living.<br />
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When I found out Dave had cancer, I researched and read anything I could on multiple myeloma. I followed a lot of other blogs from patients of MM and/or their caregivers. One thing that always stood out to me would be the long duration between posts or no updated post at all. Is this person in remission and has nothing new to update or did the person pass away?<br />
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Even though this wasn't the outcome I wanted, I do want MM patients who see this blog to know there was an ending. I also want them to know there is a lot of hope for a cure. I will be watching and cheering each of you on and will continue to support a cure for Multiple Myeloma. <br />
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Writing has always been a passion of mine and therapeutic as well. Blogging made me not feel so alone. <br />
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I always wanted to be the strong one. I never let my mom or Dave see me cry. My goal was to make Dave laugh or provide information and support. I was all business. <br />
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But, I would cry. I would cry at home. I would cry at work. I would cry every time I updated this blog. I would cry after every hospital visit.<br />
<br />
I cry now. <br />
<br />
It's been eight months since he passed and I still cry..... <br />
<br />
I feel like purpose has been stripped from my life. I feel an emptiness that used to be filled with hope and concentrated purpose. Fighting for Dave gave me purpose. <br />
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I guess this would be considered similar to the empty-nest syndrome for many mothers. My whole life revolved around multiple myeloma. Way more than my mom or Dave ever knew. Way more than Dave would have liked for me.<br />
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It was my way to control something I could not control. Now it's gone. <br />
<br />
Dave is gone. <br />
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Things that used to matter seem so insignificant to me now.<br />
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I might be depressed.<br />
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If I pretend that he is not gone, just busy, it hurts less. It's not like I saw or talked to him every single day. <br />
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But I thought about him every single day. <br />
<br />
His essence and spirit is sprinkled all over my life and the lives of my children. <br />
<br />
My heart physically aches. I guess that's where "they" came up with <em>brokenhearted</em> to describe a break up or death. <br />
<br />
I realize I'm not the only person on this earth that has lost someone. But I feel like I am. I know I'm not the only person mourning Dave. But I feel like I am.<br />
<br />
Everyone mourns differently. <br />
<br />
Some people want to deal with it head on. Some people want to live in denial. Some people want to curl up on a ball and cover themselves in the pain. <br />
<br />
I'm having a difficult time, honestly. I've certainly have felt a lot of anxiety about getting together with family and friends outside of my immediate family. I feel like I might cry and people won't understand why I'm not dealing with this better. Why I'm not stronger. Why I'm different.<br />
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I miss him. <br />
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That part that I'm having the hardest time dealing with is that we didn't have that "final" conversation where you say goodbye. <br />
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We didn't want to say goodbye.<br />
<br />
We didn't want to believe that we were losing.<br />
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But, I needed that conversation with him. I needed him to tell me everything was going to be okay. For me to be strong. And, that he would always be with me. <br />
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But that would be admitting defeat. That he was dying. And Dave just couldn't do that. <br />
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I knew he was dying. I knew for a while because I tracked his numbers and could see that the cancer was taking over. The day it really hit me was when mom and I took him to Stanford for the very last time. He could barely walk. We had to get a wheelchair to wheel him into the hospital. While waiting for his appointment, he decided he wanted to walk. It was painful to see this 62 year old, who has always been so full of life, look and walk like he was in his late 80's. <br />
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When the doctor told us that the new regimen of chemo was not working, I new then. But denial creeps in like a soft warm blanket that covers your body and offers comfort. The doctor said we could try to add another chemo and see if that works, but I could tell from her eyes that she knew it wouldn't.<br />
<br />
I knew. The doctor knew. But Dave seemed clueless. His brain was not working well by this time and he was easily confused. Perhaps, Dave knew, but didn't want to believe. Why couldn't the doctor tell him? Why couldn't I tell him? <br />
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The weeks after Stanford were filled with doctor's appointments, chemo, hospital visits, and so many transfusions, we lost count. My mom was by his side every step of the way.<br />
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A month after Dave died, Cory (my husband) had a medical situation that required him to go to the emergency room. I sat with him for over 5 hours in a freezing hospital, in an uncomfortable chair, for what seemed like forever.<br />
<br />
The whole time I was there, all I could think about way Dave and my Mom. They spent so many hours in the hospital. Too many to count. I felt so much compassion for both of them!<br />
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The last several weeks of Dave's life was the most difficult time for all of us. My mom had to singlehandedly take care of him day and night. Dave was becoming increasingly confused and my mom had to stay alert to make sure he didn't fall or get hurt somehow. She barely got any sleep. <br />
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I told my mom he was dying. He thought he was going to beat it so she believed he would too. I researched everything on the dying process. I know that seems morbid, but knowledge is control for me. <br />
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I needed to know what to expect, what to do, what it might look like, what we should do. It was incredibly helpful knowing what to expect to some extent.<br />
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I needed to prepare my mom though. She started getting more direct with the doctor until he confessed that things were not working and that he was basically staying alive by having all the transfusions. <br />
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Dave was done being at the hospital and just wanted to be home. Bless my mom's heart. She had to be the one to sit down with Dave and tell him what no one else would. Later that night, my mom called me over and her and Dave told me that he was no longer going to do anymore treatments. I cried in Dave's arms. <br />
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I felt like such a failure and kept telling him I was sorry. I couldn't save him! He just held me and cried. Still, there was no acknowledgment from him of acceptance. No goodbyes. <br />
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The doctor had told us if we stopped treatment he would probably only live 4 days. I didn't think this could be true. We called hospice. After the nurse assessed him, she privately told my mom he would probably have two weeks based on his condition.<br />
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Thankfully, my sister-in-law, Sara was over every day to help my mom. She was such great support to both me and my mom and I will be forever grateful. It was painful to see Dave face and it was equally painful to watch my mom try to care for him and stay strong when she herself was scared. <br />
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Watching him die plays over and over in my head. Watching him take his last breathe surrounded by those that loved him most has changed me. I dream about Dave. But in my dreams he is not alive, his spirit still has Multiple Myeloma. <br />
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I understand the concept of time heals. I don't cry everyday any more. <br />
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It really hit me about a month ago when I was a work and I walked across the parking lot to my office and my great staff and I was smiling. It actually stopped me in my tracks. The smile on my face quickly faded and I finished my walk back to my office with my head down. I felt guilt. Guilt that I could actually smile. Guilt that my life continues even without him.<br />
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I know that life goes on. It has to. But I feel so different. I feel a huge shift in my life. I've become trapped in a small area of safe places. I know I'm letting family and friends down. It's so hard to dig yourself out of a hold of darkness when the person that brought so much light is no longer here. <br />
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But each day I wake up, I take care of my family, I go to work. I look forward to the day when I think of Dave and it doesn't hurt. <br />
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My mom is now at their coastal home and Cory and I have purchased their home in Visalia. I refused to think of anyone outside the family living there. Dave is everywhere in the house. His love for the house, his many special touches throughout the house makes me feel closer to him.<br />
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It is hard not having my mom down the street, but she always belonged by the beach and she has some loving friends taking good care of her. We talk most days and have gone back and forth to see one another. She misses Dave more and more each day. <br />
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I've started and stopped writing this final blogs too many times to count. But I'm determined to finish it. <br />
<br />
This is the end on Earth for Dave, but not for the many of you fighting and winning against this disease. And to the many caregivers who fight along their loved one, you are not alone. You are in this fight too and you need comfort and love too.<br />
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Hugs<br />
<br />
Jeana<br />
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<br />Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-75600832385189169642017-02-28T09:19:00.004-08:002017-02-28T10:39:51.497-08:00Dave Update-Obituary and Celebration Information <h3 style="text-align: center;">
DAVID "DOC" ORLEY CALLAHAN </h3>
<h3 style="text-align: center;">
FEB 1, 1955 - FEB 24, 2017</h3>
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<span style="font-family: "calibri";">Muhammad Ali said it best, “Float like a butterfly, sting
like a bee.</span><span style="margin: 0px;"><span style="font-family: "calibri";"> </span></span><span style="font-family: "calibri";">His hands can’t touch what
his eyes can’t see…” </span><span style="margin: 0px;"><span style="font-family: "calibri";"> </span></span></div>
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<span style="font-family: "calibri";">And for seven years, David Orley Callahan “DOC,” 62, of
Visalia, CA floated like a butterfly and stung like a bee, fiercely fighting and
defeating the greatest of opponents, multiple myeloma and parotid cancer.</span><span style="margin: 0px;"><span style="font-family: "calibri";"> </span></span></div>
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<span style="font-family: "calibri";">On Friday, February 24, 2017, surrounded by loved ones,
David chose to lay down his gloves and go on the most beautiful and mysterious adventure
of his lifetime.</span><span style="margin: 0px;"><span style="font-family: "calibri";"> </span></span></div>
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<span style="font-family: "calibri";">David was born on February 1, 1955 in Fresno,
California.</span><span style="margin: 0px;"><span style="font-family: "calibri";"> </span></span><span style="font-family: "calibri";">Affectionately known as “the
favorite,” David was the second youngest of four born to Glick and Edna
Callahan.</span><span style="margin: 0px;"><span style="font-family: "calibri";"> </span></span><span style="font-family: "calibri";">A self-professed “mama’s boy,”
nary a day went by that David didn’t call his beloved mother. </span></div>
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<span style="font-family: "calibri";">David graduated from Mount Whitney High School in Visalia,
CA in 1973 where he earned both a high school diploma and a squad of life-long
friends.</span><span style="margin: 0px;"><span style="font-family: "calibri";"> </span></span><span style="margin: 0px;"><span style="font-family: "calibri";"> </span></span><span style="font-family: "calibri";">A free-spirit and risk-taker, David spent his
early 20’s traveling and exploring the world in awed wonder of what life had in
store for him.</span><span style="margin: 0px;"><span style="font-family: "calibri";"> </span></span></div>
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<span style="font-family: "calibri";">In 1985, David married Carolyn “Carol” Joyce Maness, his
wife of 32 years.</span><span style="margin: 0px;"><span style="font-family: "calibri";"> </span></span><span style="font-family: "calibri";">It was on this
magical day that a 28-year-old David was presented a dowry of three teens and a
five-year-old.</span><span style="margin: 0px;"><span style="font-family: "calibri";"> </span></span><span style="font-family: "calibri";">Run, he should - but
stay, he did. </span><span style="margin: 0px;"><span style="font-family: "calibri";"> </span></span></div>
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<span style="font-family: "calibri";">After working for years in the airlines business, David’s
thirst for personal improvement and success led him to purchase Miracle Ear, a
hearing aid business that he co-owned and operated with his close friend Dave
Benson.</span><span style="margin: 0px;"><span style="font-family: "calibri";"> </span></span></div>
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<span style="font-family: "calibri";">David will be best known for his love of life, adventure,
knowledge, and his genuine interest in every person that he encountered.</span><span style="margin: 0px;"><span style="font-family: "calibri";"> </span></span><span style="font-family: "calibri";">He will also be known for his love of the
Lakers and Dodgers, golf, wacky dance moves, and his penchant for misplacing
his wallet and car keys.</span></div>
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<span style="font-family: "calibri";">David is preceded in death by his father, Glick Callahan and
younger brother, Jeffrey Callahan.</span><span style="margin: 0px;"><span style="font-family: "calibri";"> </span></span><span style="font-family: "calibri";">He is
survived by his mother Edna Callahan of Visalia, CA; wife Carol Callahan of
Visalia, CA; brother Steve Callahan of Visalia, CA; sister Linda Callahan of
Visalia, CA; daughter Jeana Brooks of Visalia, CA; and sons Ben Lackey of Sedro
Wooley, WA; Vern Lackey of Hanford, CA; and Jason Lackey of Vancouver, WA.</span><span style="margin: 0px;"><span style="font-family: "calibri";"> </span></span><span style="font-family: "calibri";">He also leaves his adored Aunt Wana and Uncle
Clifford of Visalia, CA; countless cousins that he cherished; and numerous
grandchildren and great-grandchildren in which he took great joy.</span></div>
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<span style="font-family: "calibri";">Known for being the life of the party, a celebration in his
honor will take place at 2 p.m. on Saturday, March 4 at the Visalia Country
Club.</span><span style="margin: 0px;"><span style="font-family: "calibri";"> </span></span><span style="font-family: "calibri";">In lieu of flowers, the family
asks that you consider donations to the Multiple Myeloma Research Foundation.</span><span style="margin: 0px;"><span style="font-family: "calibri";"> </span></span><br />
<span style="margin: 0px;"><span style="font-family: "calibri";"><br /></span></span>
<span style="font-family: "calibri";">My mom's address is:</span><br />
<br />
Carol Callahan<br />
5819 W. Buena Vista<br />
Visalia, CA 93291<br />
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Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-13977258353204148192017-02-23T18:21:00.002-08:002017-02-23T18:21:53.555-08:00Dave Update- February 23, 2017 Family & Friends, <br />
<br />
This has been the hardest week of my life.<br />
<br />
We met with Hospice on Tuesday. <br />
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On Wednesday, my baby brother Ben flew in to see the man that raised him.<br />
<br />
Probably for the last time. <br />
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This morning he took a turn for the worse, or in some ways for the best. <br />
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He hasn't slept in weeks. Because he was scared he wouldn't wake up. <br />
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Mom and I spent a lot of time talking about how bad he needed to sleep- so she could sleep. <br />
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This morning that changed. Dave has entered the last stage. After a few conscious moments, one of which he asked his son, "How are you?"- Dave has been sleeping. Finally, he rests. <br />
<br />
He is not in pain. We are in pain. The hospice nurse said Dave probably only has a couple of days.<br />
<br />
I'm in shock. I knew this was coming, but I don't want to believe its really happening. <br />
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I feel different.<br />
<br />
Like I will never be the same.<br />
<br />
I've changed.<br />
<br />
I look at the world differently. <br />
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Life will never be as bright, as adventurous, as intellectually stimulating. <br />
<br />
I don't know what else to say. <br />
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<br />Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-38985772033657920922017-02-20T18:56:00.001-08:002017-02-20T18:56:27.893-08:00Dave Update- February 19, 2017Dear family and friends, <br />
<br />
It was 6 years ago in September that cancer picked our family to screw with.<br />
<br />
It wasn't going to go easy on us. It hit Dave with a cancer we never heard of, multiple myeloma.<br />
<br />
It gave Dave the latest stage of the disease, Stage III and added "high-risk" to his "poor" prognosis.<br />
<br />
By the end of the first round, Dave was covered with lesions on his scull, legs, ribs, and arms and 90% of his healthy blood cells were pushed out and replaced with the cancerous "multiple myeloma" cell. <br />
<br />
In an attempt at a KO, Dave went into kidney failure and came very close to losing his life. That is how advanced he was when we found out.<br />
<br />
Dave got right in there and fought back, going into stringent complete response after multiple rounds of a threesome of chemo called RVD. To ensure a beat down happened, he successfully went through a stem cell transplant, securing he was the champ. <br />
<br />
A year later he found out the he had a secondary cancer, parotid cancer, and had to have a very difficult surgery and rounds of radiation before he became cancer-free again.<br />
<br />
He beat down two cancers!!<br />
<br />
During this entire time, Dave was heavily on pain medications to control the terrible peripheral neuropathy he suffered from one of the chemos. <br />
<br />
He had 3 years of no cancer, but cancer had been training and insisted on a rematch. The cancer was coming back and this time it was determined to win.<br />
<br />
Dave put on his gloves, got in the ring, and did his best to contain cancer's aggression. But, Dave's body had been through so much from the first fight that he was having a difficult time dodging the hits.<br />
<br />
My mom and I sat on the sidelines cheering him on. Fight Dave!! Fight!!<br />
<br />
By the final round, we could tell Dave was tired. The chemo wasn't working and he was spending most of his days getting chemo, platelets, red blood cells, and fluids. He doesn't want to go to the hospital anymore. He was getting sicker and sicker and we new he couldn't take many more hits.<br />
<br />
Last night, my mom and Dave called me over to let me know that he was done. He could no longer fight. He was throwing in the towel. <br />
<br />
And before cancer could make the decision for him and strip him of what time he has left at home, it was decided to forego anymore treatments. <br />
<br />
I laid in him arms and we cried as my mom watched on, tears staining her cheeks. The three of us were in it together from day one. And we will be in it together as we enter the next phase.<br />
<br />
Our number one goal is to make sure he is not in pain and has some peace. Dave' s oncologist is setting Dave up with everything he needs from medicale bed to palliative care.<br />
<br />
If you want to visit, I'd just try and stop by for a short time. He is mobile and enjoys sitting in the media room or the room by the kitchen. Its difficult for him to talk, but just sitting with him and talking about memories or listening to some music, which he loves would be comforting.<br />
<br />
Hugs.<br />
<br />
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<br />Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-52147397935212447322017-02-17T16:40:00.000-08:002017-02-18T10:24:07.014-08:00Dave Update- February 18, 2017Family and Friends, Dave was released from the hospital yesterday after receiving his 5th plasmaphresis. He immediately was dropped off at his oncologists office to receive a 4 hour chemo treatment. He has two more plasmaphresis treatments scheduled for next week, along with two chemo treatments. The doctor is unsure if the plasmaphresis is making a difference. It is supposed to help with symptoms. I think he seemed a little more coherent and able to speak a bit clearer and longer, but he still has some confusion and his swelling is still an issue even though they went down for a bit this week after an infusion of a very strong water pill and by elevating his legs. But they swelled right back up.<br />
<br />
He is very weak and my mom is concerned about getting him to take his medication and eat, since she and the nurses struggled to make this happen at the hospital. He is not putting enough nutrients and liquids into his body to make up for all that is being taken from him. The doctor said his numbers were a little better, but that the amount of multiple myeloma cells are still dominating his body. <br />
<br />
Dave is having some strong feelings about being in the hospital for so long. It is something that will most likely continue since the chemo is causing his platelets and red blood cells to drop. The doctor wants to try another week of the current chemo combo to see if there is any improvements. The options after that are questionable because some of the more successful options are known to cause excessive bleeding which Dave really can't manage, unless he wants to constantly be in the hospital. Dave wants to continue to fight so we expect that there will be more hospital visits and chemo. A hospital bed is on order. This should help him be more comfortable at home. And he will be getting some sort of feeding bag whereas the much needed nutrients can be given to him through his port. Not sure how this works, but will find out more next week. He is happy to be home and his pup Coco is over-the-moon to have him back.<br />
<br />
I worry about my mom. She will be his full-time caregiver and it is truly full-time. She has to help him with most things and actually got a taste of it at the hospital where she spent a great deal of time taking care of Dave. He is using a walker and help from my mom to get up and around. <br />
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As hard as it is to see, I also see the beauty in the commitment my mom has made to Dave. To truly see the vows she made to him over 30 years ago "in sickness and in health" come in to play, is probably the best lesson I will ever learn from my mother. She is committed, when I couldn't commit, she is strong, when I was weak, she is loyal when I wasn't. She loves Dave, she always has. She said she can't help but love him because he loves us kids, but I know it is more than that.<br />
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I'm just in utter amazement to see love tested at this level. One person caring for another person at their most vulnerable. She has to take the roll on of taking care of Dave and being strong when her life has been turned upside down too! It is not just his life that has been changed, but hers as well. My mom is one of the best people to take care of you if you are sick. She will wait on you and make sure you are comfortable, but she has always raised us to get up, wipe it off, and carry on. If Dave wants to fight this, she will be encouraging him to be an "active fighter." <br />
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Thank you to all his family and friends who came to visit Dave while he was in the hospital. It allowed my mom a little reprieve and Dave time to spend with the people he loves the most. If anyone would like to come help for a few hours to give my mom a break just let her know and see if it is a good day for a visit. He tends to not like her out of his sight, but she will need that time away to regroup in order to carry on. <br />
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Hugs<br />
<br />
Jeana Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com1tag:blogger.com,1999:blog-3621513551093675581.post-32708389425346102092017-02-14T12:47:00.003-08:002017-02-14T12:48:00.401-08:00Dave Update- February 14, 2017Hello friends and family, I know so many of you are thinking about Dave and my mom and they certainly needs your positive thoughts and prayers.<br />
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Dave has been in the hospital since Saturday. Unfortunately, three weeks into the new chemo combo and there has been no improvement, but Dave's health continues to deteriorate as he fights the cancer itself and all the many side affects and damage done by the medication meant to heal him.<br />
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The best analogy I can give is that Dave is like a pitcher of water that has many holes. Every time you cover one hole up with a finger another starts to leak. We are running out of fingers as we keep getting more and more holes.<br />
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I'm so happy that many of you stopped by to see him and my mom last week. I know he loved seeing his cousins and his beloved Aunt Wana. We had a little birthday celebration for him on February 1 and although he was tired, he came out to visit with me, my brother Vern and his family, his sister Linda, and momma. I think he was a bit overwhelmed with the amount of people, but it did make my mom happy to have some of her kids there.<br />
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The swelling in Dave's legs, feet, and ankles is extreme. He probably has about 20-30 pounds of water retention that water pills won't touch. This has made walking very uncomfortable for him. We found out the swelling has to do with congestive heart failure.<br />
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Heart failure does not mean his heart has stopped working, but that is not pumping as good as it should. This has caused his kidneys to respond by causing the body to retain water and salt, thus the fluid retention. Another symptom is congested lungs which they have found some fluid in one of his lungs. This has caused him to have some difficulty with breathing. He has also had a rapid heart rate because his heart is attempting to pump enough blood to the body. <br />
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Dave has not been eating which isn't helping the edema (swelling of body tissues). He is having difficulty swallowing. The issues with swallowing has not only made it difficult for him to eat, but also difficult to take his medication. Yesterday when I visited him at the hospital, we were told that he has bronchitis. The nurse tried to give him an oral antibiotic, but Dave struggled to take it. They sent a speech therapist over to get more information and assess his eating and drinking. They are trying adjust his diet to liquid and softer foods.<br />
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The reason he is in the hospital, among the fact that he needed infusions of platelets and red blood cells is the doctor has decided to try pheresis. This is a procedure where the patients blood is drawn, separated into certain elements and then replaced back in the body. Dave had this done when he was initially diagnosed and was going into kidney failure. It saved his life. We are hopeful that the procedure will at a minimum relieve the swelling and make him more lucid. It won't help the multiple myeloma, but it can help his body want to fight the cancer. <br />
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Have you felt like there was a crack in your heart? I can literally feel my heart slowly breaking as I watch this man I adore fighting such a fierce opponent. I have never felt this type of pain before. I understand the circle of life and I know this is part of it, but having cancer is a cruel fate.<br />
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I feel angry. Angry at GOD! I have yelled and screamed and cried in my car driving home. This isn't how things were supposed to happen. I was supposed to take care of Dave in his old age. His grandma lived to over 100 and my grandpa to 90. Why did Dave have to get cancer at 56! And spend the last 6 years literally fighting for his life. And fight he has. He is my hero. He is the bravest man I know. He has not given up. Even would I would have. He still has places he wants to go. It's not necessarily new places, but he loves to share places with people he loves. He told me the other night he would like to go back to Switzerland and Fiji. I wish I could make that happen for him. <br />
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Many of you know the heart and spirit of my dad. He is the life of the party. To see him so vulnerable, weak, confused, and scared is causing the crack in my heart to grow deeper. I miss him! I want him back! I don't want him to leave me! It hurts so bad! I try to be strong when I'm with him and my mom, but....<br />
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He wants to go home. Every time my mom is with him he asks to go home. He doesn't want to be at the hospital anymore. I don't blame him. He's got a port in his neck, blood constantly being drawn, infusions, chemo; honestly too many things to list. I feel selfish to ask for a miracle. Why would God do that for our family when there are so many more people praying for the same thing. <br />
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Dave finished his first treatment last night and is about the same today. He will be there at least 4 more nights for the treatment and more after he gets out. The doctor is taking it day by day and we will keep placing our fingers on each hole in the pitcher under there are no more fingers left.<br />
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You can text my mom if you would like to send Dave a message. She will read them to him. He is pretty tired and overwhelmed with all the treatments and not up to too many visitors, but know he appreciates you well wishes and love.<br />
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Hugs<br />
<br />
JeanaJeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-111375363273192232017-01-28T18:55:00.003-08:002017-01-28T18:56:24.510-08:00dave Update- January 28,2017Hello family and friends, I wish I had better news. On Wednesday, we received the last lab that we were waiting for, Dave's M-Spike. The M-Spike is one of the best ways to monitor the progress of the cancer. Our goal is to be 0.0, this would mean that there is no active multiple myeloma cells and that Dave was in complete response (similar to remission). Dave's M-Spike came back as 3.4. <br />
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This, and the fact that his numbers haven't significantly changed after 4 rounds of Dara (new chemo), it has been concluded that this chemo on its own is not working. Thursday, Dave had an infusion of Cart (chemo) and he was started back on Dex (steroid). On Friday, back to the oncologist for his weekly Dara infusions. His labs showed his red blood cells and platelets were low and his calcium is high. So after hours of his chemo infusion, Dave had to go to the hospital for night of blood infusions and an infusion of another drug that helps with the high levels of calcium. <br />
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Dave is not doing well. I want to be as forthright as possible. He is not getting better, in fact he is getting worse. Our prayer is that this new combo will take affect quickly because his health is deteriorating quickly. He is very confused and is having a difficult time processing information. This has a lot to do with dehydration, low blood counts, and the high calcium levels. The doctors are doing absolutely everything they can do to treat all of these symptoms. Some of the symptoms are from the disease. Some of the symptoms are from the chemo and treatments he is getting to fight down the disease. <br />
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I have to thank all of you for sending your love and kind words to my mom and Dave. They do need that positive support and encouragement. I have to give a special thanks to Steve Strong, a long-time friend of Dave who has been coming by regularly to pray with Dave and just be the great friend he has always been. Thank you as well to Dave and Jackie Benson (Dave's business partner and wife) who came by for a visit even though Dave B. just had serious eye surgery. <br />
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It is difficult to watch someone you love in pain, scared, and suffering a cruel disease. Sometimes facing it makes us question our own mortality. Sometimes I want to forget this is happening to our family. I don't want this disease to win. I want to control it. How would I handle having cancer? Would I fight? Would I be as brave and strong as Dave has been? I hate how the doctors look at you all sad like they have a secret, but they don't want you to know. I hate how people avoid you because they don't want to see you sick. I hate that I have done that exact same thing to others I should have reached out to but was too scared because I didn't know what to say. You don't have to say anything. Being present is enough. <br />
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I'm not saying it is easy. I tend to joke and go into research mode. It's my way of coping. I try to be strong and helpful, but the reality is I just want to BE with two of the people I love the most in the world and I want them to know I am here for them no matter what. Maybe the three of us are in denial. Hope is a powerful thing. This is Dave's fight. We are in the ring with him and we will stand right by him for as many rounds that he wants to go.<br />
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Hugs<br />
<br />
Jeana<br />
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<br />Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-31721433367369281322017-01-25T16:41:00.001-08:002017-01-25T16:41:19.703-08:00Dave Update- January 25, 2017Hi family and friends, I know you've been anxiously waiting for information regarding Dave's appointment with the Stanford Multiple Myeloma specialist. <br />
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Monday was an incredibly long day. We left at 7:30 a.m. and did not get home until 9:30 p.m. in the evening. It was quite a ride. We hit the blackest clouds I think I've ever seen and the rain was so hard we could barely see.<br />
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Upon arriving, Dave went to draw blood. He draws blood so often, I wonder how he has any blood left. Oh ya, he doesn't. Thus, the endless transfusions. <br />
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Because of the bone damage due to lesions and swollen, feet, ankles, and lower legs, Dave has a very difficult time walking. He insisted on walking even though a wheelchair would have been easier for him. He is the most courageous and strongest man I have ever met. <br />
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By the time his appointment came at 1:20 p.m., we were ready and already tired. People kept getting called, even those who came after us. We were all getting a little restless. It truly is a humbling experience when you are in a unit of the hospital that deals solely with cancer. You see many people fighting the fight and their loving caregivers right by their side. There was a boy around my sons age, wheeled in on a gurney waiting to be seen. Cancer does not discriminate and it does not give pardons to the young. This young boy touched each of us and you can't help but think no matter how hard you have it, someone out there has it harder.<br />
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Finally my mom, who I get my patience from, went up and asked about our appointment. Ends up they actually forgot about us. Geesh, not a good start. We did get a free parking pass and a $10 dollar gas card. I think a couple steak dinners would have been nice....<br />
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We met with the specialist and one of her team members. They had a lot of questions. The first one being to Dave, "How are you?" Dave, remembering his manners that his momma taught him instantly responded, "Fine." "No he's not!," I interjected. He might as well not have not been there because mom and I didn't allow any information to be left out. If you know Dave, he likes people and he will take the time to ask about others even when we have an appointment to talk about HIM! That's where I come in. I'm the enforcer. "Are you eating,?" the doctor asks Dave. "No, he's not,!" I respond for him. "Are you in any pain?" "Yes, he is. Everything hurts and he is having problems walking, his nose has been bleeding, his feet, ankles, and legs are swollen, he has had to have multiple transfusions...." See what I mean? Dave might of well just stayed home. He was really interrupting MY appointment with the doctor, tee, hee.<br />
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The doctor stated she reviewed his numbers that we brought from his oncologist and stated it didn't look like the Daratumumab (new chemo that he started on December 30) was working after four rounds. Daratumumab is a new break though drug that has shown positive response for patients who have relapsed or are refractory to two or three previous options.<br />
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She didn't have his blood results back from earlier in the day and after asking what was the date on the labs she was reviewing, it seemed she had yet to receive his latest labs that were conducted that previous Thursday. "Doctor, according to my research, many patients don't see any results until after six rounds. If you are looking at results that are before his forth round and you don't even have today's labs, shouldn't we wait until we get today's labs back before making that assessment,?" I asked. <br />
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She agreed and we decided if there was no improvement we would add another chemo and make it a combo of Dara/Dex/Cart. I asked about a couple other combos that I studied and she said they were good options, but because of Dave's low blood red cells and low platelets, they wouldn't be a good option for him. <br />
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I asked her to look at Dave's legs and feet so we could determine why they are so swollen. We thought it might be a reaction to a drug he used for the first time that helps him with calcium, but she believed it had more to do with other issues, like perhaps the fact that he is not eating and not getting enough protein among other possibilities that we will be looking into. <br />
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Being the mature daughter that I am, I responded, "Ah ha, I knew it!" Then mom and I proceeded to rat him out regarding his picky eating habits (way before cancer). I told the doctor I've raised two kids and I'm very versed on holding someone down to get them to take something they don't want. Man, German doctor's are very serious. I got nothing from her on that one.<br />
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We went over some other things to look out for: blood clotting, spine issues, etc. that we will be discussing with his oncologist. "If you have any questions, you can always message me on the Standford's MyHealth page," the doctor shared. I looked at her with all the seriousness I could muster up, "You sure you want to open your email up to me?" Silly, silly doctor....<br />
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Let's just put it this way, when I asked for Dave's oncologist's email because I had some questions for him, Dave responded, "You're going to be polite, right?" <br />
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"Geesh, Dave, I'm not a monster! I'm your daughter! O.K, same thing!" Mostly when you want your dad to get the best care possible and the only thing he can think to ask the doctor is, "You're German, right?" God love him. He can't help himself.<br />
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Needless to say, we left feeling like we didn't get far. I reviewed Dave's latest numbers today and it does look like there has been little improvement. I'm waiting for his M-spike results, which, along with checking his bone marrow and IGa, is a good lab to review in order to track his progress. He will be meeting with his local oncologist on Friday to discuss further, but it looks like we are going to have to try something new. I'll keep you posted.<br />
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After getting home, I had a pinched nerve in my lower back and a sore neck from being in the car and waiting at the hospital so long. Mom and Dave have been waiting in hospitals and doctor's offices and driving the drive to Stanford more than anyone should have to endure. <br />
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The love, compassion, and respect I have for my mom and Dave are beyond words. One day in their shoes makes be realize what amazing human beings my parents are. I plan to be with both of them, hand-in-hand, through this fight until we can't fight anymore!<br />
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Thank you all for the love and support. Keep your positive texts and messages coming. Dave is tired, but he is reading your text messages. Don't forget my mom either. Caregivers often get ignored, but she is in it for the long haul and it is emotionally and physically taxing for her as well.<br />
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Dave's number is: 559-740-8815 and mom's is 559-909-0863. Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-51268510428610093642017-01-19T16:11:00.001-08:002017-01-19T16:23:26.753-08:00Dave Update- January 19, 2017 Time goes so fast. It was 2013 the last time I updated you. The good news is that for the past several years Dave has led a relatively normal life for someone who has fought cancer. <br />
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Dave was diagnosed with Multiple Myeloma, cancer of the plasma cells, in September of 2010. Upon diagnosis, 90% of Dave's plasma cells were malignant and his kidneys were failing. He was vigilant in his fight. He went through rounds of chemo and had a stem cell transplant in 2011. Both were a success and he reached stringent complete response. Since this cancer is incurable, they don't call it remission. Stringent complete response was the best of the best. Dave chose to not go on maintenance treatment which would require him to be on a non-stop regiment of chemo. <br />
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The news was short lived as we soon found out Dave had malignant parotid cancer. Surgery was a success, but he suffered many side affects from the surgery, including facial paralysis, numbness, and other issues. Not much longer after that, Dave was hospitalized with the most painful case of shingles. Dave has also suffered from extreme bone pain do to lesions on is bones caused by the cancer. Since being diagnosed, and up until recently, Dave has worked and has been a major contributor to the success of Miracle Ear. Many multiple Myeloma patients can't even work. It goes to show how strong Dave is in mind and spirit. <br />
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Finding out Dave had cancer was like a sucker punch to him, me, and our entire family. He was 56 years old when diagnosed with this disease that typically plagues individuals much older. Sadly, that is not the case any longer as more and more young people are fighting this treatable, but not curable disease.<br />
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In 2015, we got the news that Dave was out of remission. His numbers were rising and it was time to get on chemo. There were many new options and Dave was placed on two chemo therapies. The cocktail of chemo seemed to hold his numbers steady until August 2016 when they seemed to rise and continue to rise at a rapid pace. Dave started to lose his voice and was having very bad pains in chest area. We found out that he broke two ribs and the cancer was affecting his vocal cords. He also started having bloody noses that would not stop. <br />
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The doctor became concerned and did a full body scan and bone marrow extraction. We found out that Dave had multiple lesions on his scull, ribs, shoulders, and legs. Needless to say, he was in a lot of physical pain. The doctor gave us the news that the cancer is back with a vengeance and that once again 90% of his body has malignant plasma.<br />
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His health has deteriorated very quickly. He was sent to Stanford right after Christmas where they started him on a new chemo in hopes that it will beat the cancer down. He is on his 4th round and little has changed. He has been hospitalized multiple times because of low red-blood cells that had to be replaced through transfusions and just this week had to get a transfusion of plasma. Tonight, he has to do another transfusion of red-blood cells. He is also anemic and has had to have liter upon liter of fluids. <br />
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I know many of you are concerned as is our entire family. We do not know what the future holds or what is up next for Dave. It is up to him now. Dave is a fighter and he is doing all that he can to sleigh this beast again. <br />
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We head to Stanford on Monday to meet with the Multiple Myeloma specialist to discuss options.<br />
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If you want to come by for a visit, please text Dave or my Mom to see if it is a good time. You may also contact me at 559-972-5754 if you have any questions or would like an update. <br />
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Dave is celebrating is 62nd birthday of February 1 if you would like to send warm wishes.<br />
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Hugs<br />
<br />
Jeana<br />
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<br />Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-1612510555005283242013-01-29T08:54:00.003-08:002013-01-29T08:54:49.083-08:00Dave Update-January, 2013Wow, I can't believe its been 7 months since I've updated this blog. I can't believe it has been 2 years and 4 months since I met my arch enemy- CANCER. <br />
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This is what my children so lovingly call each other. Arch Enemies.<br />
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And, yes, I realize this does not reflect positively on my parenting skills. <br />
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I hate cancer today as much as I hated it over two years ago when it penetrated itself into my life and the lives of my family. <br />
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Since then, it has taken several of my colleagues and one of my favorite rappers of all time, MCA of the Beastie Boys, at age 47!<br />
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Yes. I like rap. I realize it is hard to believe, but its true. <br />
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As a matter of fact, the only reason I tune into American Idol these days is because of Niki Minaj. "Wow Boo, that song was tappen!" The kids say I embarass them, when I say things like, "Yo, Yo, Baby Pop, What Up, and True dhat. And, God forbid if I get my groove on to a song by Lil Wayne, Pitbull, or Flo Rider while driving. <br />
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Hey, I'm sorry, rap is way better than country music. I actually heard a country song on the radio the other day, called, "I drank a beer with Jesus!" Really? Now, I can understand if it was titled, "I drank a glass of wine with Jesus." But a beer!<br />
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Sorry, I digress... as usual. <br />
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Dave's cancer continues to be inactive. Another words, he continues to be in complete response (remission) since finishing initial therapy at the end of 2010/beginning of 2011. He was in remission when he got the stem cell transplant in June of 2012, and it was, and continues to be, our hope that he will be in remission for a very long time. He still goes to the doctors monthly and has an infusion of zometa for his bones and is still fighting peripheral neurapathy caused by the cocktail of chemo that helped to save his life. Pain management will probably be something he has to deal with from now on. It's part of his new normal.<br />
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There has been so much new information and new drug therapies getting approval that are providing more and more options for multiple myeloma patients. It is amazing what is happening in the multiple myeloma community in terms of research. <br />
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I've learned more and more and have more and more questions I want answered. <br />
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The most interesting information that I've learned is in regard to Dave's abnormal chromosome (4;14) which makes him a high-risk patient. Before, it was thought that if you had any traces of this abnormal chromosome, or other high-risk deletions, you had a poor prognosis, i.e. the high-risk prognosis. Well, it has recently come to light that it is not the fact that you have the abnormal chromosome that makes your prognosis worse, but the amount of cells that are affected by the abnormal chromosome. So, my next question to Dave's doctor is, how much of this abnormal chromosome cells does Dave have?<br />
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The high-risk prognosis typically means that the patient doesn't stay in remission very long (Dave has been in remission for 2 years). Note: The average remission for a low-risk patient is 2-3 years. Also, high-risk patients don't respond as well to therapies found to work on low-risk patients. Dave, responded with the best response you can get from initial therapy and from a stem cell transplant! <br />
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If, or when, Dave does end remission (at this point there is no cure), he has so many options for continued therapy. There are so many new combinations of drugs that are proving to be very affective and even some combinations that are working on patients that had become refractory to other therapies. <br />
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What was once considered a terminal cancer is very close to becoming labeled a chronic illness. I really believe this will be the case in the very near future and that would mean a cure could be not far behind. <br />
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Sadly.<br />
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Dave has been wallowing in this cancer thing.<br />
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I mean, seriously, all he does is sit around a mope. <br />
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He doesn't even leave the house.<br />
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He makes sure that everyone knows he has CANCER!<br />
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NOT!<br />
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Reality. <br />
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Dave is now on a two-week cruise in the Orient, along with my mom, his brother Steve (and Jerri), and cousin Randy (and Sharon)... <br />
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After, spending Thankgiving in Costa Rica with my mom in November...<br />
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And, after, spending a long weekend with my husband Cory, and brothers Ben and Vern, in Washington in September. <br />
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Dave is living life.<br />
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Like there is no tomorrow.<br />
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He is loving his family.<br />
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Like he'll never see them again.<br />
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He is treating cancer.<br />
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Like it has no power.<br />
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Dave is a constant reminder to me on how unique we are. Statistics don't define us. Cancer does not define us. It is the ability of our human spirit to have hope, curiosity, and purpose. It is only when our spirit dies, that our body will follow. <br />
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Please say a special prayer to the family of my Aunt Kay who was laid to rest this past Saturday. Watching the highlights of her life in pictures was beautiful. She had an amazing life, was loved by many, and made a difference in the lives of all that she touched. Until we meet again. I love you Aunt Kay. Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com1tag:blogger.com,1999:blog-3621513551093675581.post-29116498487842641642012-06-04T13:34:00.000-07:002012-06-04T13:47:51.724-07:00Happy Anniversary!- 1 year post-SCTJune 4, 2012-Dave Update<br />
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Dear family and friends, it was one year Saturday that Dave received his stem cell transplant (SCT). To many multiple myeloma patients, this anniversary is a celebration of receiving their brand new immune system. To those who had successful SCTs, like Dave, the annivesary is also a celebration of life, remission, and hope. So much has happened in the past year, since we received the new and improved "Super Dave". As of today, Dave continues to be in remission. He has been in remission even prior to the SCT and he is currently not doing any maintenance therapy. He does get Zometa treatment to strengthen his bones and takes other dailey medications, but no chemo. Average remission can last up to three years. The good news is there are so many options if relapse occurs, such as another stem cell transplant, use of the medications that Dave responded so well to initially, and many other approved drugs and drugs that are showing to be very successful in trial studies. Dave is working, golfing, and even taking yoga classes at the gym. I'm trying to picture him in downward dog or crouching tiger, hidden dragon pose. Okay, the last one I believe was a book, movie, or sushi, not sure. Yoga is actually great for Dave because it can strengthen his bones which is important when you have multiple myeloma. <br />
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I can't speak for Dave on what he has gone through, spiritually or otherwise. I can only share with you what I observe. Dave is embracing life! I know it might sound morbid, but he does talk of a "bucket" list, and I do think it is much more sophisticated than just going to hit a "bucket of balls" at the Valley Oak Golf Course. He has always loved to travel and he is an adventurous traveler. He has a lot of destinations he would like to visit or revisit. One is the orient. My mom, Dave, Randy and Sharon (Dave's cousin and wife), and possibly Cliff and Wanna (Dave's aunt and uncle) have planned a two week cruise of the orient that will take place in early 2013. I find it facinating that he chose the orient, but not surprised. I kind of laugh at what he might have in store for my mom. My mom and I tend to be trepidatious when it comes to the adventures of Dave Callahan. Hey, that could be a cool reality tv show, The New Adventures of Super Dave Callahan. Watch Super Dave and his side-kick, The Immuninator (get it? his new immune system...ehh), as they attempt to outlast, outwit, and outplay multiple myeloma to win the ultimate title of "survivor". Sorry about that...my husband always tells me I watch too much reality t.v. But, hey, cancer is our "reality". Humor me.<br />
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I can also tell you with certainty that "family" in on Dave's bucket list. Dave has always been family-oriented, but he is more determined to enjoy his wife, children, parents, grandchildren, siblings, etc. We have had some great family fun in the past year. Many fun celebrations, including a visit from my baby brother Ben and his family. Dave even braved the "most magical place on earth" by taking the family to Disneyland. Okay, personally, I'd rather have my eyeball poked out than go to Disneyland, but for mom, Dave, Ben, and Jessica, they got to see Disneyland once more through the eyes of a child. I wonder if Disneyland was on Dave's bucket list? Possibly...I mean nothing entices me more than being at an amusement park with thousands of screaming kids and the hope of going on "It's a Small World" just ONE more time! <br />
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Lft: Conner, Dave, Porter at Disneyland</div>
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Clockwise: Mom, Ben, Jessica, Porter, and Conner enjoying Disney.<br />
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Dave and Porter (peace, back to you two, man!)<br />
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The Lackey Boys: Lft: Conner, Ben, and Porter<br />
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The Callahan Boys: Lft: Steve, Glick, and Dave<br />
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Is grandma laughing or crying? You just never know!<br />
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Spoiled Cat Alert: Geesh, Sidney must be really spent after a day of being pampered and doing absolutely nothing as Casa De Callahan!</div>
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Thank you Lord for this year of healing. You have answered so many of my prayers. You have been faithful to me, even when I doubted in you. Thank you for the gift of time and the capacity of our hearts to overflow with love. Thank you for revealing yourself to my parents. I would also like to say a special prayer for one of Dave's friends, Sean, who was recently diagnosed with cancer himself. Sean, as cancer travelers a year and a half in, we are here for you if you just need to vent or have positive thoughts coming your way. <br />
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Much love and thanks to our wonderful, supportive, and loving family and friends. You are the wind beneath our wings....Tee, hee, that is so corny, but I'm totally into quoting movies today. <br />
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<br />Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com1tag:blogger.com,1999:blog-3621513551093675581.post-52838742401242344422012-02-01T12:11:00.000-08:002012-02-02T09:20:41.661-08:00February 1, 2012Hello family and friends and Happy Belated New Year! Oh, Dear Lord, please let 2012 be better than 2011! That's what is amazing about life...there is always HOPE. Hope for a New Year. <br />
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Speaking of new years, Dave celebrates a new year of life today! Happy Birthday, Dave! If you get a chance, give him a call or send an email. <br />
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In terms of Dave's health, no news continues to be good news. We are 8 months post-transplant and still in complete response (remission for multiple myeloma). Not to say that Dave had the same response that Steve Austin had when his body was replaced with bionic parts (any Bionic Man fans out there?), but he's working full-time and has been for months. This is amazing considering what his body has been through. I'm not saying there hasn't been any pain, bone aches, picky taste buds, and a recent yucky staff infection, but he's come along way from one year ago. A lot of MM patients get all kinds of infections due to a compromised immune system. Typically it takes close to a year to really get the immune system to a fighting level after a stem cell transplant. And, Dave's immune system will always be compromised to some extent due to the disease. <br />
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It's strange how something can consume your life and every waking breath and then just go quiet. I feel like that is what has happened with Dave's cancer. Maybe it is our way of trying to forget, or maybe its our way of just coping. Personally, I hate the quiet. I need to know everything, be involved at all times, and feel like I have some control. I want to know, "what's next?" Everyone's journey is different though, and Dave is dealing with his journey in his own way. He has chosen at this time to not do maintenace therapy. There is so much controversy on this subject and no clear answer or statistics to back up what is the best course of action. Quality of life is important to Dave and some of the maintenance therapies that people are doing are similar to the induction therapy Dave did at the beginning that included Velcade and some other drugs. Dave had a great response to these drugs, but they did give him painful neorapathy. The good news is that they are improving upon these drugs and finding ways to lessen the side affects. <br />
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But today we celebrate! We celebrate Dave's birthday, we celebrate kicking cancer's ***, and we celebrate life! <br />
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I pray that today brings Dave much joy, peace, and celebration. I pray that God continues to heal his body, but more importantly, his heart and soul.<br />
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Please continue to pray for my entire family. As a family we continue to struggle. Grampa (Dave's dad) has had some health issues of his own. Please say a special prayer for him. He is definately the spiritual leader of our family and we need to send good thoughts his way as he has always for us. When tragedy strikes or families are hit with cancer, it can bring a family closer together or tear them a part. My prayer is that through Jesus, all the emptiness the each of us has gone through is filled up with his love.<br />
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JeanaJeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-1136654855150190842011-10-31T11:56:00.000-07:002011-10-31T11:56:46.405-07:00Dave Update-October 31, 2011Hello family and friends, Happy Halloween! Sorry, I haven't updated you in a while, but no news, is indeed, good news. Dave received his results back from the bone marrow extraction several weeks ago and the results show he is still in complete response (remission). This is our first indication that the stem cell transplant was a success. I thought it was a no brainer because he went ino the stem cell transplant in complete response. But, I just learned that a fellow multiple myeloma patient's number actually went up after getting the stem cell transplant. Knowing this, makes me feel even more blessed for Dave's continued success. Our goal is to stay in remission as long as possible. There are so many patients trying different things to battle this incurable cancer. Some take an extremely agreesive approach with back-to-back stem cell transplants followed by several years on maintenace drugs. Others, choose to forego maintenace and wait to relapse before enduring another stem cell transplant or additional drug therapies. Studies are really mixed on both these approaches and it will possibly be years to prove that maintenance after stem cell transplantation increases life span. Individuals like Dave, who suffered from neuropathy due to Velcade (which is one of the drugs used in maintenance therapy), often prefer to take a break from the drugs until relapse. <br />
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This has truly been the most painful 13 months of my life. Each day I wake up and pray that I can give all the problems, loss, and heartache my family is going through to God. It is a struggle because I always want control and want to fix everything. I realize more than ever that I can not. Therefore, I pray for a tender and forgiving heart. I pray that I can say the right things, listen with an open-heart, and have strength when others need me most. Dear Lord, protect my family. Bless each and every one of them with your grace. Reveal yourself to them so that they can see and be filled with your unwavering love. Fill up the holes that make them empty and allow them see the love and truth that is before their eyes. Thank you Lord for the many gifts of healing you have given us. Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-85910561427372484932011-09-15T08:53:00.000-07:002011-09-15T08:58:50.105-07:00September 15, 2011Hi family and friends, I know it has been a while since I've updated you on Dave's condition. I think, as a family, we've just been enjoying "living" in complete response and watching Dave recover. He is regaining his life... he is back to work...hair is growing. A matter of fact, he's sporting a pretty jazzy silver-fox goatee. I love it! Dave has good and bad days, but the good days are finally outweighing the bad day.<br />
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Yesterday, Dave had a bone marrow biopsy at his local oncologist. This will be our first true "results" since the stem cell transplant. He went into the transplant in complete response and we anticipate the results will show that he continues to be in complete response. This is part of the "re-staging" process. Dave goes to Stanford at the end of October to meet with his doctor for a check-up and hopefully to discuss what is next, if anything. <br />
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September holds a lot of signifigance for our family... it is an anniversary month of sorts. It was in September, 2010 that we found out that Dave has Multiple Myeloma. It's one of those days in your life that you never forget. Similar to historical events that occur and you say, "I know exactly where I was when I heard the news." Some of us remember where they were when they heard JFK was killed. Some of us remember where they were when Princess Diana died in a horrible car crash in Paris (okay, maybe just me!), and I imagine, all of us, remember where we were when we heard the horrible news that our country was being attacked by terrorist on September 11, 2001. But, for me, I can add "when I found out Dave had cancer" to my list. <br />
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When I think of celebrating a "year" in life, I think of celebrating birthdays or anniversaries- not a diagnosis of cancer! STUPID, POINTLESS, LIFE-ALTERING CANCER! I hate cancer! I hate it more today than I did a year ago. Why should I even acknowledge its grip on our lives? It's an invisible opponent that attempts to weaken our faith and take away our hope. <br />
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But, it hasn't... It hasn't broken our faith. And, it hasn't stolen our hope. So, HAPPY FRICKEN ANNIVERSARY CANCER. Here's to "kicking your ***"!<br />
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I tend to have a annoying habit of seeing both sides of coin no matter how bad things are. So, on the flip side:<br />
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1. Happy Anniversary to successfully fighting and beating down cancer.<br />
2. Happy Anniversary to truly learning about the loving and compassionate hearts and spirits of our family and friends.<br />
3. Happy Anniversary on being able to find faith and hope when things seem beyond our scope of understanding.<br />
4. Happy Annivesary on a year of appreciation, of life, of love, of family, of friends, and of our most wonderful savior Jesus Christ. These most cherished of gifts that so often we take for granted.<br />
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Thank you to everyone for you love, prayer, and for lending a helping hand to Dave is both his personal life and his professional life.Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-41361529857388399612011-08-01T15:22:00.000-07:002011-08-01T15:22:24.418-07:00Dave Update-August 1, 2011Hello family & friends, just a short update on Dave. We are now 58days post transplant. Each day, Dave is getting stronger. He has put on approximately 10 pounds and is getting some color back to his skin. And if you investigate closely, I believe a little peach fuzz is growing on his head... <br />
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He had an appointment on July 27 in Stanford to meet with his doctor. His big brother Steve drove along with him since my mom had to work. Thanks Steve! The appointment included labs and a discussion with his doctor. In terms of continuing care at Stanford, his doctor said he can do follow up appointment at his local oncologist. This is great news and eliminates the burden of having to drive 3 1/2 hours and back for a doctor's appointment. So far, all Dave's numbers look good. Dave asked the doctor what kind of "remission" he could expect. She gave a median of 2 years. Anotherwords, she doesn't know. Each patients is different and there is no way of predicting what the future holds. It's best to take things "one day at a time". But, Dave has been on the good side of luck ( I call it the grace of God) since getting this disease. I'm not sure what is next in terms of care. I believe Dave is leaning toward no maintenance therapy. I"m in support of this because, although recent research has proven maintenace therapy (using Revlimid or thalidomide after SCT, delays the progression of the disease, but don't prove patients live longer. The truth of the matter, the studies are too new to really tell the benefit. Nevertheless, maintenance therapy is becoming a standard following SCT (stem cell trasplant). To even make matters more confusing, additional international studies and data is showing possible secondary cancers utilizing Revlimid for maintenance. My vote is no and I believe this is Dave and even his Stanford doctor's vote as well. If Dave falls out of "remission" (complete response) he has other options such as an additional SCT (he has extra from his last harvest), maintenance chemos, and some very promising clinical trials. <br />
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</div>The doctor will monitor his numbers regularly and probably in the next couple of months he will have another bone marrow biopsy for restaging. <br />
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I see a lot of the "old", and I mean, "pre-cancer" Dave lately. My husband, myself, and the kids went to Montana for a couple of weeks recently and when we returned we all went out for dinner for my mom's birthday. It was the same day Dave got back from Stanford. It was just fun. We talked, laughed, and just had fun. Of course, my mom and I were a bottle of wine in before we began, but.... it just seemed like "old times". <br />
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He still has fatigued days, but he's getting better every day. Dave, my mom, and our friend Donna went to church with Cory and I yesterday and I find it amazing how God works. The sermon for the day was on the book of Job. The sermon was basically about how we give praise to God when things are good, but question him when we are in crisis. I felt like it was a great message for what our family is going through and the importance of being faithful in good times as well as in bad.<br />
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Much love, Jeana.Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com1tag:blogger.com,1999:blog-3621513551093675581.post-85842729805416489602011-07-12T12:31:00.000-07:002011-07-12T12:31:43.911-07:00Dave Update-July 12, 2011Hello family and friends, sorry for the lapse in blogging, but we've been just "living life". I follow quite a few blogs from Multiple Myeloma patients and it's weird when the disease gets first introduced to you, you get nervous when a week goes by without any updates. But, what I've learned is that when the blogging stops happening so frequently, the living has started to return to some form of normalcy. I guess that is what is happening with our family to some extent. We are enjoying not having chemo, not being in the hospital, and not having to take "as many" pills. Dave is basically concentrating on getting back into fighting shape after 10 months of continuous treatment. He continues to have good days and then a "fatigue" day, but has started walking each morning. He is trying to get used to his decreased appetite and picky (more than his normal picky) taste buds. I've read his taste buds will eventually return to normal. He has lost about 20 pounds, but other than muscle loss I think he looks pretty darn good. Cory, myself, and the kids went over for a barbeque on Saturday night and really had an wonderful time. I think this was a "good" day for Dave and we all just basked in it. He even took a little dip in the pool. Just sitting in it, not emercing his entire body. For some reason, I guess you are not supposed to swim, golf, garden, etc. for a year after transplant. It has to do with bacteria and its affect on a compromised immune system. Seriously, why don't they take all the fun away? I've done a lot of research and I've seen little on this. I know a few MM patients that enjoy wine. Whatever... simple pleasures like taking a dip in the water to cool off has so much more meaning when someone tries to take it away from you. <br />
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We are now 37 days post transplant and Dave will go back to Stanford at the end of the month for blood work. His last appointment 2 weeks ago showed his number were good. We are not sure what is next in terms of maintenance. Some continue on a maintenace program of small doses of chemo and some chose not to until relapse. I'm not sure what Dave's decision will be, but either way we are enjoying our time of complete response!<br />
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Much love, JeanaJeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-15408049691197809832011-06-28T15:48:00.000-07:002011-06-28T15:48:27.273-07:00Dave Update-June 28, 2011Hi there family and friends, today marks 25 days post transplant and day 6 back at home for Dave. My mom and Dave returned home last Wednesday and the kids and I were there to welcome them (whether they liked it or not). I think they were shocked by the heat, but still thrilled to be back with there favorites. No, not me or the kids...but Dexter and Shelby (their cats)! It does kind of make them sound like those weird cat people, huh? A matter of fact, my kids have so many grandparents (the gift of coming from divorced parents) that when they were young they started differentiating them by characteristics that made sense to them. Can you guess what they call mom and Dave? You guessed it! Cat Grandma and Cat Grandpa! Ya, it's official they are weird cat people. You almost can picture a house filled with 100's of cats with matching litter boxes... I digress. <br />
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Since being home, my mom has returned to work (hospitality instructor at SEE) and Dave has begun his job of recovering and allowing his brand new immune system to kick into gear. He has been extremely fatigued and says its hard to wake up in the morning. He's still struggling with his appetite and has had some aches and pains. This is very discouraging to him. I tell him this is normal, but I think his mind wants things to happen that his body is just not ready for. It really will take some time for Dave to regain his strength and start feeling like himself again. He will have good days and bad days. Most patients are still in the hospital 25 days post transplant! We have to give Dave a big whoop, whoop for his super hero status. He was supposed to go to Stanford for a check up tomorrow, but I think he was going to try and postpone it. He really is too tired to make a one day trip. I think they are going to try and reschedule for next week.<br />
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Keep our family in your prayer and say a special prayer for my grandfather who has been suffering from some health issues himself. Come on Callahans, what happened to the "Luck of the Irish?" (Definition: Some suggest "Luck of the Irish" means that the <span class="yellowFade">Irish</span> are inherently lucky, and seem to be able to <em>land on their feet</em> when bad circumstances occur). Interesting choice of words... Don't cats "land on their feet?" Sorry, Dave. It couldn't be helped! Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-6142373496804424192011-06-21T08:22:00.000-07:002011-06-21T08:22:24.906-07:00June 21, 2011Hello family and friends, great news! Dave had his port (where they administered chemo and the transplant) removed yesterday. And do you know what that means? Well, it means he is done and the doctor's feel his numbers and progress is at a point where he can come home! So, Dave and my mom are coming home tomorrow! I'm so excited, but not even close to what they are feeling. They had the apartment paid until Saturday, but management allowed them a refund for the unused days! The news just keeps getting better. Not to mention, Dave has been released 2 1/2 weeks post transplant. This is very unusual and just shows how well Dave has done. <br />
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We had a great time with Dave and my mom this past weekend and we feel lucky we were able to experience a little bit of what they've been living. I made Dave take me to the hospital even though it was his day off. I know, I know, cruel, but I wanted to see what he's seen. The hospital is amazing. Dave was saying how he probably could have appreciate the architecture more had he not been there for treatment. Dave has lost some weight because he wasn't eating much from his stay in the hospital. Luckily when we got there he was having a little more of an appetite and was able to get a few good meals in. Dave and Cory watched golf while mom and I went to the mall. It was underwhelming and over-priced. I guess I wouldn't make a very good wealthy person because I could never justify spending $350 on a purse. If it's more than $40 I'm questioning my sanity. Later in the evening we toured the grounds of their huge apartment complex. The walking trails were amazing. The funniest part of the walk was when mom had to return to get something and had Dave hold her glass of wine. Yes, mom and I walk with wine. It's tradition (wink, wink). Dave has to wear this mask when out in public to protect him because of his compromised immune system. It's not like a surgical mask, more like a gas type mask. Maybe not quite as dramatic, but nevertheless, he's stand out. Dave, Cory, and I are waiting for mom and Dave is holding this glass of wine with his mask on when this walker walked by. I thought I was going to fall over with the look on this guys face. I even had to do a reinactment for everyone it was so funny. I guess it wasn't every day that you see a masked man holding a glass of wine.<br />
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We walked over to the club house on the property and hung out and visited on the balcony and then even played a foursome of pool. I don't want to brag, but I made the winning shot. Mind you, it was my only shot, but still....<br />
<br />
We had a little glitch in our hotel reservations and at 9 at night after three glasses of wine had to search Palo Alto for a place to stay. Thanks a lot Priceline! We ended up at the Hooker Hut! Okay, the Travel Lodge, but it might has well been called...<br />
<br />
It was all worth it to get to see my parents and be with Dave on Father's Day. Thank you to everyone for all your support. I saw the many cards they had displayed around the apartment. You are all so sweet, kind, and thoughtful. I'm so proud to call you our famiy and friends!.<br />
<br />
Dave will have to return to Standford for a check up in early July. For now, he will need to rest and allow his body to reboot. Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com1tag:blogger.com,1999:blog-3621513551093675581.post-36841687443722011492011-06-17T16:49:00.000-07:002011-06-17T16:49:26.037-07:00Dave Update- June 17, 2011Hello Family and Friends, Dave is plugging along today. He's feeling a bit better and started to eat some small meals. He even started to ease slowly back with a short walk. He's in training I guess for our visit tomorrow. His numbers are continuig to rise. A matter of fact he is doing so well he does not have to go back for a doctor's appointment until Monday! That means he has the whole weekend free, yay! And maybe, just maybe, they might remove his port sometime next week. <br />
<br />
Cory and I are heading out real early in the morning for our visit. We are so excited to see them and get to spend part of Father's Day in Palo Alto. Speaking of Father's Day:<br />
<br />
I have to say God has blessed me with two amazing dads. I've been a daddy's girl from birth and couldn't imagine that another man could hold a special place in my life like my real dad. But, as you know by now, there was one... Dave.<br />
<br />
I met Dave when I believe I was 12 or 13. My brothers were 14, 16, and 3 if my estimation is correct. I actually remember one of the first times I met Dave, and frankly I'm surprised I ever saw him again. My mom loves to tell this story, probably because she is just as shocked as I am that he came back around. My mom was working when she called the house to check on us and I told her that my older brother and his friend were throwing up EVERYWHERE! I was crying and freaking out and trying my best to clean up the mess. My mom sent Dave by to check on us. What was SHE thinking? Seriously, was she trying to scare the guy away? Here he comes by, I'm crying and he's having to help me get my brother in the shower to clean him up. There was throw up everywhere, even in the front of the house! I don't recall all of the details, just that Dave tried his best to help. The funny thing is, not too long after that he told my mom he was relocating from Santa Maria (where we lived) to the Valley. Hmmm, curious, no? There are differing accounts of what happened at this point, but the end result was that my mom and Ben moved to Hanford, and then ultimately to Visalia with Dave, where they've been ever since. I stayed behind and lived with my dad, but would visit often on holidays and in the summer. <br />
<br />
There are so many experiences and memories that make up a relationship and Dave has been here for most of my milestones: College, multiple heart aches, trips abroad and the most important:<br />
<br />
<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEidivLFVVoAyxQ2rqj0ZuP0Z51IOPzLksUAeLaw0GWDySzOVWuzjW5eIz_CT-JfwxVv6F_Uequy2HthnGJHVXSo_UEQ5zyQrX01oaZrmH2D-8v5_GH1jEh6FMdA_9-TwDLyHIvEtfG4xFF5/s1600/jeanaanddave.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" i$="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEidivLFVVoAyxQ2rqj0ZuP0Z51IOPzLksUAeLaw0GWDySzOVWuzjW5eIz_CT-JfwxVv6F_Uequy2HthnGJHVXSo_UEQ5zyQrX01oaZrmH2D-8v5_GH1jEh6FMdA_9-TwDLyHIvEtfG4xFF5/s320/jeanaanddave.jpg" width="210" /></a></div><div align="center"></div><div align="center">Me and Dave dancing the Father/Daughter dance at my wedding. My dad walked me down the aisle and I shared my first dance with Dave. </div><div align="center"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqGJSHqdaBdT8alr5UcrpRDwXlbdTN_FgXLbBJrfHuvnLhqRZY_I5eXHZlmMVYHRBzZIrkI9UsEuZd1aE1GGT-KKE2Df_m7rdlkiBtTARpPKKvufm26CRwTeliYh647C98baTwXcCxvcmO/s1600/edenbirth.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="260" i$="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqGJSHqdaBdT8alr5UcrpRDwXlbdTN_FgXLbBJrfHuvnLhqRZY_I5eXHZlmMVYHRBzZIrkI9UsEuZd1aE1GGT-KKE2Df_m7rdlkiBtTARpPKKvufm26CRwTeliYh647C98baTwXcCxvcmO/s320/edenbirth.jpg" width="320" /></a></div><div align="center">My mom and Dave were there for the birth of my first child, Eden. Dave videotapped me while I was in labor and was in the waiting room while I delivered my precious baby daughter.</div><div align="center"><br />
</div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjHqkO8A0xaxMpABcM9J-fuvSqIapSGZdqLcxqmNPyPekU50PaL2Z7LS_jDVbtJLQ2f79qn7ZvLvb3O01_C2KVbeR46jAW790RLDzLsUo_nxtnUq3T9-jDBkBhKUlNEd1Y1rSEe5PtPiAm1/s1600/masondave.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" i$="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjHqkO8A0xaxMpABcM9J-fuvSqIapSGZdqLcxqmNPyPekU50PaL2Z7LS_jDVbtJLQ2f79qn7ZvLvb3O01_C2KVbeR46jAW790RLDzLsUo_nxtnUq3T9-jDBkBhKUlNEd1Y1rSEe5PtPiAm1/s320/masondave.jpg" width="176" /></a></div><div align="center">Three years later, along came Mason who shares his middle name with his Granpa, Mason David</div><div align="center"><br />
</div><div style="text-align: left;">These are just a few of the examples of what makes up our relationship. I'm so looking forward to many more. I've shared this poem I wrote for Dave with you all before, but I have to include it under this section as Father Day approaches. It really does sum up all my feelings for Dave. </div><div style="text-align: left;"><br />
</div><div style="text-align: left;"><div style="text-align: center;"><b style="mso-bidi-font-weight: normal;"><span style="color: red;">To Father, From Daughter</span></b></div><div align="center" class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">What makes a Father-Daughter bond so strong?</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">Is it a biological thread that makes us belong?</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">Do genetics, chromosomes, and heredity from the start</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">Determine what ultimately makes up our heart?</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">If this is true, than look no farther;</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">I’m simply a mixture of my father and mother</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">Is that the only answer of what make me, me?</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">Or could I have fallen farther from the tree?</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; tab-stops: 120.0pt; text-align: center;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">Wasn’t I shy and afraid of everything new?</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">Wasn’t I the quiet girl that didn’t have a clue?</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">No goals and no ideas of what I could be.</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">But you had a way of seeing way beyond me.</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">You showed me the world was so much larger.</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">And that never trying just made things harder.</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">You watched me fail and make mistake after mistake.</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">Never letting me fall completely flat on my face</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;"><span style="mso-tab-count: 1;"> </span>When I look in the mirror, it’s you that I see</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; tab-stops: 108.75pt center 3.0in; text-align: center;"><b style="mso-bidi-font-weight: normal;">Not so much physically, but spiritually.</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; tab-stops: 108.75pt center 3.0in; text-align: center;"><b style="mso-bidi-font-weight: normal;">We have the same flaws, same restlessness, and dry wit.</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; tab-stops: 108.75pt center 3.0in; text-align: center;"><b style="mso-bidi-font-weight: normal;">There’s an understanding here that some just don’t get.</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">What does “step” father mean anyway?</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">Does it mean you are a step lower or step farther away?</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; tab-stops: 161.25pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">Does it define you as having less worth?</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">Simply because you didn’t witness my birth?</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">I know without a doubt that biology doesn’t matter</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">It’s </b><u>not</u><b style="mso-bidi-font-weight: normal;"> what makes up a father and daughter</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">It’s investment in time, in laughter, and pain</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">It’s more than sharing a person’s last name.</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">Genetics has nothing to do with what’s real</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">It’s your imprint on my soul that sealed the deal</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">Now it’s my time to show all I’ve learned</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">Now that the tables have finally turned.</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><br />
</div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">I will be here for you, as you’ve been there for me</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">In sickness and in health or whatever it may be</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">When you look in my eyes, don’t look any harder</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><b style="mso-bidi-font-weight: normal;">What you will see is a daughter’s love for her father.</b></div><div class="MsoNormal" style="margin: 0in 0in 0pt; text-align: center;"><br />
</div><br />
</div>Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-38442334257573675782011-06-16T16:04:00.000-07:002011-06-16T16:04:27.453-07:00Dave Update-June 16, 2011Hello family and friends, Dave was released from the hospital today. His numbers have gone up to 3.8 which is really fantastic! He's not feeling like a million bucks and hasn't ate much in the past several days, but hopefully now that he is back to the apartment his appetite will improve. I can't imagine hospital food is very appetizing. My mom is convinced that he did worse in the hospital and I tend to agree. Of course, he will still be monitored closely for infection. In fact, in my research, it typically takes 6+ months for the immune system to get back to "normal" after transplant. That doesn't mean he won't be able to come home, but that he will have to continue to be conscientious of germs, sick people, etc. In reality, MM patients will always have a compromised immune system to some extent and should practice safety precautions for life. <br />
<br />
Thank you for all your prayers, letters, phone calls, messages, etc. We are lucky to have so many loving people in our lives.<br />
<br />
JeanaJeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-48369107261611541342011-06-15T11:53:00.000-07:002011-06-15T11:53:45.780-07:00Dave Update-June15, 2011Hello family and friends, I spoke with Dave this morning and he said his white blood count is rising. He's over 1.0 right now. I'm not a hundred percent sure how Stanford classifies the safe level, but some of the MM patients I follow are saying 2.0 or higher. I'll let you know when I find out for sure. We are hopeful that Dave will get released tomorrow. They said if he doesn't get any fever today after getting him off antibiotics than he should be safe to go back to the apartment tomorrow. I'm hoping this is true since we are going for a visit on Saturday. I can't wait to see Dave and Mom. I know it has only been two weeks, but it feels like forever. I can imagine it feels a ton worse for them. Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-22021197596544939852011-06-13T11:32:00.000-07:002011-06-13T11:35:34.056-07:00Dave Update-June 13, 2011Hello family and friends, I spoke with my mom this morning and she informed me that Dave was hospitalized last night with a fever. In the last blog, I explained that any fever above 100.4 they require the patient to be hospitalized so that they can monitor them even closer. Mom was taking Dave's temp regularly last night and it reached 100.8 so she insisted they call the hospital. Around 8 p.m. they headed over and he was admitted. At this point there is nothing to be concerned about. It's really amazing that he made it 10 days post transplant before being hospitalized. This is just normal precautionary measures. <br />
<br />
They will keep Dave admitted until his white counts start to rise. They will be giving him high doses of antibiotics for the fever, fluids, his meds through an IV, and will keep him very comfortable. <br />
<br />
If there are any changes, I will let you know.Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-45138500933135090662011-06-12T20:00:00.000-07:002011-06-12T20:00:54.743-07:00Dave Update-June 11, 2011Hi there family and friends, sorry for the lapse in updates, but there wasn't really much new to report until now. Dave is still doing really good so far, except he has got to a few of those pesky mouth sores. The mouth sores are in his throat so you can imagine how annoying that must be. He received some "liquid" pain med today so hopefully that will help manage the discomfort they cause. He also has a slight fever. Nothing alarming at this point, but obviously they will montior him carefully. They got it down to a 99 degrees I believe and if it goes to 100.4 they would hospitalize him so they can monitor him even more cafefully. He is in great hands and the staff is taking great care of him. <br />
<br />
Each day is a new unknown, but so far Dave has been the ideal patient, breaking all "normal" and "to be expected" symptoms and complications transplant patients typically experience. <br />
<br />
Cory and I will be going for a visit next weekend. I seriously can't wait! I really miss mom and Dave and can't wait to see them. I hope to go to one of Dave's doctor's appointment, see the hospital, and maybe sneak over to the mall with my mom, while the guys visit. I'm so excited to be in Palo Alto on Father's Day and get to spend some time with Dave and my mom. <br />
<br />
My parents have been thrilled by all the cards and gifts family and friends have sent. How thoughful and kind of all of you. It can be lonely being away from your home, but you have made it easier. Thank you.Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-30915568317281763912011-06-08T09:47:00.000-07:002011-06-08T09:47:15.566-07:00Dave Update-June 8, 2011Hello family and friends, it looks like things are looking up for Dave. He started feeling better yesterday and was able to go on a short walk with my mom and finally eat a little. The medication they gave him for nausea has been working so no more "up chuck". His numbers are dropping just like they should and he will start nupragen shots tomorrow. Neupogen is a growth factor that is used to bring Dave's stem cells back up to fighting levels (after chemo wiped out his immune system) and helps to stimulate an accelerated production of white blood cells (which Dave needs to fight off infections). We are day 5 post transplant and Dave still hasn't been hospitalized! We are close to zeroing out his system so if we get through the next few days without any complications, we should be over the hump. Fever and infection- stay away!<br />
<br />
I read and follow many blogs on multiple myeloma patients and Dave really is doing remarkable well considering everything his body has gone through. <br />
<br />
I also want you all to know today is Mom and Dave's Anniversary. It was 26 years today that they married. Wow! I was 15 years old and I'm sure many of you remember what a great day it was. Well, actually, now that I think of it, many of you probably <em>don't "</em>remember" much about that day- if you know what I mean! (wink)! <br />
<br />
Not many couples make it 26 years these days and I have a lot of respect for my parent's commitment to each other and our family. Those of us who have failed at marriage know what a challenge it is and how selfless you have to be at times to make things work. I've seen this time and time again between my mom and Dave. I see it now, as my mom so lovingly and painsakingly has cared for Dave. I see it in Dave as he took on four children and raised them as his own. <br />
<br />
I found this poem I wanted to share. I did not write it, but I thought it was a wonderful example of what God wanted out of marriage. I think mom and Dave are a beautiful example of this and I hope that all of us who have struggled in marriage and commitment can recognize why God created this amazing partnership.<br />
<br />
<span style="font-family: Arial, Helvetica, sans-serif;"><strong><span style="color: #006666;">God created marriage,<br />
for he knew we'd need a friend.<br />
To share our hopes and dreams with,<br />
and love us 'till the end.<br />
<br />
God created marriage,<br />
to teach us how to share.<br />
All our earthly assets,<br />
and make us more aware;<br />
<br />
That someone else's feelings,<br />
are more important than our own.<br />
And not one of us is perfect,<br />
so we can't cast a stone.<br />
<br />
God created marriage,<br />
to teach us to forgive.<br />
His life was our example,<br />
He showed us how to give.<br />
<br />
God created marriage,<br />
to teach us how to say.<br />
"I love you" to another person,<br />
each and every day.</span></strong></span><span style="font-family: Arial, Helvetica, sans-serif;"></span><br />
Please say a special prayer for mom and Dave today as they celebrate their anniversary. I pray that God strengthens their commitment to each other. I pray that their eyes are wide open to the gifts they have given each other over the years and that an abundance of appreciation, forgiveness, and peace will cover them. Jeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com0tag:blogger.com,1999:blog-3621513551093675581.post-60353238257986557702011-06-06T16:15:00.000-07:002011-06-06T16:15:06.829-07:00Dave Update-June 6, 2011Hola friends and family, we are day 3 post transplant and Dave is still experiencing loss of appetite and nausea. The good news is, no mouth sores as of yet. Mouth sores are really common for transplant patients and extremly bothersome as well. Dave's white blood cells still haven't bottomed out, but typically it takes about 7 days post transplant so hopefully by the end of the week we will be heading on the upswing. Dave has been sleeping a lot due to the benadryl they are giving him along with the anti-nausea medication. As far as Mom and I are concerned, let him sleep through this and wake up all better! Dave is still doing good enough that he has not had to be hospitalized so this is a great sign. I feel so much anxiety being so far away as I'm sure a lot of you do, but I have zero doubt that Dave will come out of this as Charlie Sheen would say, "Winning!" <br />
<br />
God is good.<br />
<br />
Much Love,<br />
JeanaJeana Brookshttp://www.blogger.com/profile/11433348799521464493noreply@blogger.com1